Research Ethics and Cultural Competence in Environmental Research Program Readings

Module One Materials: Cases for Class Exercises

Bengston, D., Schermann, M., Moua, M., & Lee, T. 2008. Listening to Neglected Voices: Hmong and Public Lands in Minnesota and Wisconsin. Society and Natural Resources 21, 876-890. 

Bento, S., Hardy, E., & Duarte Osis, M. 2008. Process for obtaining informed consent: women’s opinions.  Developing World Bioethics 8, 197-206. 

Hall, A. 2002. What the Navajo Culture Teaches About Informed Consent. HEC Forum 14, 241-246. 

Helgesson, G., Ludvigsson, J., & Stolt, U. 2005.  How to handle informed consent in longitudinal studies when participants have a limited understanding of the study.  Journal of Medical Ethics 31, 670-673. 

King, M. & Faasili, U. 1999. Community-based management of subsistence fisheries in Samoa. Fisheries Management and Ecology 6, 133-144. 

Marsh, H. & Kenchinton, R. 2004. The role of ethics in experimental marine biology and ecology. Journal of Experimental Marine Biology and Ecology 300, 5-14. 

McCaulet, L. Beltran, M., Phillips, J., Lasarev, M., & Sticker, D. 2001. The Oregon Migrant Farmworker Community: An Evolving Model for Participatory Research. Environmental Health Perspectives 109, 449-455. 

Mukadasi, B. & Nabalegwa, M. 2007. Gender mainstreaming and community participation in plant resource conservation in Buzaya County, Kamuli District, Uganda. African Journal of Ecology 45 Suppl. 1, 7-12. 

Singer, E. & Couper, M.  Do incentives exert undue influence on survey participation? Experimental Evidence. Journal of Empirical Research on Human Research Ethics 3, 49-56.

Schmidt, C. 2001.  Indi-gene-ous Conflicts. Environmental Health Perspectives 109, A216-A219.

Module One Materials: Assigned Readings

Appelbaum, P., Lidz, C., & Klitman, R. 2009. Voluntariness of consent to research: a conceptual model. Hastings Center Report 39, 30-39.

Matthew, D. 2008. Race, religion, and informed consent: lessons from social science. Journal of Law Med Ethics 36(1), 150-74. 

The National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research (1979). The Belmont Report. Ethical Principles and Guidelines for the Protection of Human Subjects of Research.

Schrag, B. 2006. Research with groups: group rights, group consent, and collaborative research. Science and Engineering Ethics 12, 511-521.

Smith, L. 1998.  Concept analysis: cultural competence. Journal of Cultural Diversity 5, 4-10.

Module Two Materials: Case Studies

Kuletz, V. 2002. The movement for environmental justice in the Pacific Islands. The Environmental Justice Reader 2002, 125-142. 

Lowe, J. & Shaw, T. 2009.  After Katrina: racial regimes and human development barriers in the Gulf Coast region. American Quarterly 61, 803-827. 

Module Two Materials: Class Readings

Davis, S. & Reid, R. 1999. Practicing participatory research in American Indian communities. American Journal of Clinical Nutrition 69, 755-759. 

Gbadegesin, S. & Wendler, D. 2006. Protecting communities in health research from exploitation. Bioethics 20, 248-253. 

King, P. 1992. The dangers of difference. Hastings Center Report 22, 35-38. 

Minkler, M. 2004. Ethical challenges for the ‘outside’ researcher in community-based participatory research. Heath Education Behavior 31, 684-697.

Panikkar, B. & Brugge, D. 2007. The ethical issues in uranium mining research in the Najavo Nation. Accountability in Research 14, 121-153. 

Thomas, S. & Crouse, S. 1992. The Tuskegee legacy. Hastings Center Report 22, 38. 

Module Two Material: Optional Class Reading

Israel, B., Schultz, A., Parker, E., & Becker, A. 1998. Review of community-based research: assessing partnership approaches to improve public health. Annual Review of Public Heath 19, 173-202. 

Module Three Materials: Case Studies 

Almany, G., Hamilton, R., Williamson, D., Evans, R., Jones, G., Matawai, M., Potuku, T., Rhodes, K., Russ, G. & Sawynok, B. 2010.  Research partnerships with local communities: two case studies from Papua New Guinea and Australia. Coral Reefs 29, 567-576. 

Castleden, H. 2009. ‘Hishuk Tsawak’ (everything is one/connected): A Huu-ay-aht worldview for seeing forestry in British Columbia, Canada. Society and Natural Resources 22, 789-804. 

Chen, P., Diaz, N., Lucas, G., & Rosenthal, M. 2010. Dissemination of results in community-based participatory research. American Journal of Preventative Medicine 39, 372-378. 

Davis, S. & Reid, R. 1999. Practicing participatory research in American Indian communities. American Journal of Clinical Nutrition 69, 755-759. 

Flint, G., Luloff, A., & Finley, J. 2008. Where is ‘community’ in community-based forestry? Society and Natural Resources 21, 526-537. 

Kendrick, A. & Manseau, M. 2008.  Representing traditional knowledge: resource management and Inuit knowledge of barren-ground caribou. Society and Natural Resources 21, 404-418.

Prokopy, L. 2008. Ethical concerns in researching collaborative natural resource management. Society and Natural Resources 21, 258-265. 

Quandt, S., Arcury, T. & Pell, A. 2001.  Something for everyone? A community and academic partnership to address farmworker pesticide exposure in North Carolina. Environmental Health Perspectives 109, 435-441. 

Schell, L., Ravenscroft, J., Cole, M., Jacobs, A., Newman, J. & Akwesasne Task Force on the Environment. 2005. Health sisparities and toxicant exposure of Akwesasne Mohawk young adults: a partnership approach to research. Environmental Health Perspectives 113. 

Sibongile Masuku Van Damme, L. & Meskell, L. 2009. Producing conservation and community in South Africa. Ethics, Place & Environment 12, 69-89. 

Module Three Materials: Assigned Readings 

Arquette, M., Cole, M., Cook, K., LaFrance, B., Peters, M., Ransom, J., Sargent, E., Smoke, V. Stairs, A. 2002. Holistic risk-based environmental decision-making: a native perspective. Environmental Health Perspectives 110, 259-264. 

Charles, J. & Menzie, C. 1998.  Identifying Southeast Asian immigrant populations in Massachusetts at risk from eating contaminated shellfish. Journal of Environmental Management 51, 161-171. 

Coburn, J. 2002. Combining community-based research and local knowledge to confront asthma and subsistence-fishing hazards in Greenpoint/Williamsburg, Brooklyn, New York. Environmental Health Perspectives 110, 241-248. 

Flint, C., Luloff, A., & Finley, J. 2008. Where is ‘community’ in community-based forestry? Society and Natural Resources 21, 526-537.

Gibbs, M. 2001. Toward a strategy for undertaking cross-cultural collaborative research. Society and Natural Resources 14, 673-687. 

Kimmerer, R. 2000. Native knowledge for native ecosystems. Journal of Forestry 98, 4-9.

Léger, A. 2005. Intellectual property rights in Mexico: do they play a role? World Development 33, 1865-1879. 

Menzie, C. & Butler, C. 2006.  Understanding ecological knowledge. Traditional Ecological Knowledge and Natural Resource Management 2006, 4-10.

Quigley, D. 2006. A review of improved ethical practices in environmental and public health research: case examples from native communities. Health Education and Behavior 33, 130-147.

Sharp, R. & Foster, M. 2002. Community involvement in the ethical review of genetic research: lessons from American Indian and Alaska Native populations. Environmental Health Perspectives 110, 145-148. 

Sze, Julie. 2002. Asian American activism for environmental justice. Peace Review 16, 149-156.

Module Three Materials: Assigned Readings (Optional)

The Akwesasne Research Advisory Committee. The Good Mind Research Protocol.  Akwesasne Notes New Series 2, 94-9.

Kimmerer, R. 2002. Weaving traditional ecological knowledge into biological education: a call to action. BioScience 52, 432-438. 

MacQueen, K., McLellan, E., Metzger, D., & Kegeles, S. 2001. What is community? An evidence-based definition for participatory public health. American Journal of Public Health 91, 1929-1938. 

Module Four: Case Studies

Larson, S. 2009. Communicating stakeholder priorities in the Great Barrier Reef region.  Society and Natural Resources 22, 650-664. 

Sibongile Masuku Van Damme, L. & Meskell, L. 2009. Producing conservation and community in South Africa. Ethics, Place & Environment 12, 69-89. 

Module Four: Class Readings

Davenport, M., Leahy, J., Anderson, D., & Jakes, P. 2007.  Building trust in natural resource management within local communities: a case study of the Midewin National Tallgrass Prairie. Environmental Management 39, 353-368. 

Foster, D. 2009. Cultural humility and the importance of long-term relationships in international partnerships. Journal of Obstetric, Gynecologic, & Neonatal Nursing 38, 100-107.

MacIntyre, A. 1984. After virtue: a study in moral theory. University of Notre Dame Press: Notre Dame.